Rare Diseases
Rare diseases are chronic and often life-threatening conditions, which can be either acquired or genetically determined, primarily affecting children and adolescents (75%). A disease is considered rare in the European Union if it affects no more than one in 2.000 people.
Find more information on statistics and facts about rare diseases HERE
Many of our experts in pediatric specialties lead a Type B Expertise Center or an associated center. For rare diseases, interdisciplinary care is particularly crucial, as is the networking among centers, various medical specialties, and adult medicine to ensure patient-centered care.